Crazy Sexy Warrior Princess

29 Aug

Kris Carr is someone I know from New York and sometime after I left she went on what has to be the bravest journey a human can go on — trying to understand and come to terms with a rare cancer, a cancer that when I sent the name to my dad (an oncologist) his response was, “oh no.”

Kris always embodied the warrior — heart of a lion, smile of an angel, mouth like a truck driver — and her battle still wages on. She blogs about it at Crazy Sexy Cancer Blog. A trailer for the movie can be seen at her website as well.

Information about Epithelioid Hemangioendothelioma and treatments are hard to come by, but Bethblogs suggests starting with a search of ASCO and the NIH for information on clinical trials.  A definition of the disease is: Epithelioid Hemangioendothelioma is a rare, low-grade malignant vascular tumor that occurs in a variety of sites, including the bone, liver, and lungs.

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